NOTES from Dec. 2014 Meeting – Tulsa

DHS Update – Mark Jones, Director of Community Living and Support Services

Waiting List Update – JoAnne Goin, DDS Director

Lack of Adult Day Programs Tulsa area – Lisa DeBolt, Tulsa County Coordinator, SoonerSUCCESS

Family Questions & Comments

Next Meeting –

Oklahoma City

Thursday, March 12, 2015

Room C-47 (Basement)

1:30 pm

Sequoyah Building – Capitol Complex




DHS / DDS Waiting List Meeting

Thursday – September 11, 2014

1:30 PM

  Working Application January 2006

 Attendees: 30

Represented in attendance:

13 – Parent or Family Member

1 – Self-Advocate (person with a disability)

1 – Governor’s Office

1 – Governor’s Blue Ribbon Panel Chair


1 – OHCA (Health Care Authority)

1 – Department of Rehabilitative Services

4 – Agency supporting those with developmental disabilities in Oklahoma

1 – Gubernatorial Candidate staff

Representing those on the Waiting List – 8

First Time Attendees – 5

Locations represented – Norman, Noble, Oklahoma City, Mustang, Broken Bow, Duncan and Moore

Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, Oklahoma LEND, SoonerSUCCESS, Oklahoma SibShops, Office of Disability Concerns, Putnam City Schools, Oklahoma Disability Law Center, Duncan Group Homes, Oklahoma Family Network, Oklahoma Developmental Disability Council

 Waiting List Update – JoAnne Goin, DDS Director, discussed the number of people served because of the most recent legislative appropriations to address the waiting list.  There were 130 added to waiver services. They are working application date January 2006 and will be working applications at a rate of about 30 a month until they use the full amount appropriated. Ms. Goin also discussed the closing of the two state run institutions, Northern Oklahoma Resource Center, Enid (NORCE) and Southern Oklahoma Resource Center in Pauls Valley, (SORC).  They anticipate to have all of the residents living at NORCE moved by the end of the year and hope to have the last few at SORC moved within a few months. She reported that the transitions to the community have had a few hic-ups but are moving as projected.

Waiting List Breakdown_June 30 2014

Waiting List Breakdown_June 30 2014 with county

Family Questions & Comments

A provider from Duncan brought messages received by her agency over the past week or so:

  1. 55 year old man supported by a 90 year old mother who broke her hip
  2. 30 year old man who is supported by his mom who has stage 4 cancer. Hospice has been recommended by the mom’s doctor
  3. Mother who has a 17 year old son in an out of school residential school. The son will be turning 18 and graduating in December and she needs a residential placement when he comes home.
  4. An adult sibling called about her elderly mom and sister who has Down Syndrome currently lives in Missouri but will be moving back to Oklahoma so she can assist with care of the mom and sister. She needs information and her sister is not on the Waiting List.

A parent spoke about his 24 year old son who uses a wheelchair for mobility. He spoke about three issues affecting his son: 1) bath chair broke and SoonerCare has denied request to purchase a replacement. 2) His son needs new AFO (splints for ankles) and SoonerCare has denied coverage for these orthotics. 3) Dental coverage just to repair cavities

A mom from Canadian County spoke of her 25 year old daughter who requires constant care talked about being a single mom and trying to take care of her daughter and work to support them both. Her daughter is on adult SoonerCare and receives SSI.  She had a difficult time talking about their issues and challenges due to periotic stops for crying. She did tell us about the high stress, challenges and cost to pay for her daughter’s prescription medication with the 6 prescription limitation SoonerCare has for adults. There was no offer of support or assistance given to this mom when she finished speaking.

Another parent from Broken Bow has a daughter who is seven years old daughter who has severe developmental and medical disabilities and challenges. This is a single living in a small house. They are a nurse and the daughter is on SoonerCare through the TEFRA qualification process. They are in extreme need for architectural modification so that she can request and use a Hoyer lift. The bathroom is too small for the lift to fit and so is the daughter’s bedroom.

One more issue brought up was the cost of the psychological examination that is cover by DDS for those applying for DDS, but for those applying for TEFRA this exam must be at the cost of the family. JoAnne Goin said that DDS pays their contracted psychologist $350 per exam. It was suggested that OHCA contract with psychologist for the same purpose regardless of who pays for the service.

All the issues mentioned by families, except one, were addressed by JoAnne Goin, DDS, and Lori Kann, OHCA.  I would like to thank both of you for offering to help these families and following up with them after the meeting.


Next Meeting – Tulsa!

Thursday, December 11, 2014 @ 1:30PM

Skyline East Building – 3rd Floor Conference Room

6128 E. 38th Street

Tulsa, Oklahoma





DHS / DDS Waiting List Meeting

June 12, 2014

1:30 PM

Working Application Date: Oct. 2005

Attendees: 29

Represented in attendance:

8 – Parent or Family Member

6 – Self-Advocate (person with a disability)


2 – OHCA (Health Care Authority)

4 – Agency supporting those with developmental disabilities in Oklahoma

2 – Oklahoma House of Representatives

Representing those on the Waiting List – 9

First Time Attendees – 9

Locations represented – Mustang, Anadarko, Oklahoma City, Del City, Norman, Midwest City, Moore, Sand Springs


Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, Oklahoma LEND, SoonerSUCCESS, Phoenix Residential Services, Apex Provider Agency, and Dynasty Care Services

  • DHS Update – Ed Lake, DHS Director – It was a tough year for the Oklahoma Legislature because of the expected budget shortfall, but Oklahoma DHS fared well. Director Lake said DHS had no reductions and was in fact increased to help meet the Pinnacle Plan. The governor and the Oklahoma legislature approved an additional $1 million to work the waiting list. Director Lake reports it was a good year for the DHS budget all together.
    • A parent asked Director Lake if the full amount needed to dissolve the waiting list was requested from the legislature this year. Director Lake reported that they did not request the full amount needed understanding the current climate of Oklahoma’s budget, but they do request a certain amount which has for the past three session been reduced to the $1million they have actually received.
  • Waiting List Update – Marie Moore, DDS Deputy Director & Debbie Pumphrey, DDS Deputy Director – It was reported that they are working application date Oct. 2005. They have moved 268 people to waivers over the past two years. They currently have 111 cases pending. Until the past two months, when the budget was undecided, they were pulling 50 cases a month from the waiting list, to “work”. When the budget discussion started and they were not sure if they would actually receive the million dollars they reduced the number to 30 a month. With this new appropriation, they will go back to pulling 50-60 cases a month to be ‘worked’. Of the cases removed from the waiting list, 60-75% have been closed due to inability to locate or they have moved out of state, 12% have declined for different reasons, i.e. continuing with the Family Support Subsidy, no longer wanted service, or unknown. It was reported that less than 4% of those removed from the waiting list did not qualify due to not meeting DDS or Medicaid eligibility. They also reported that there were about 120 individuals placed on waivers in the past year due to emergency situations. Most of those emergencies were identified due to the state taking custody of the person. When asked the number of those coming off the waiting list who were children versus adult, it was reported that about 1/3 were children and the rest adults. When asked how many qualify for Community Waiver instead of the In-Home Supports waiver, it was reported that 15% will receive the Community supports waiver.

Waiting List Breakdown_March 31 2014

Waiting List Breakdown by county March 2014

  • State Funded Employment Services – Regina Chase, DDS spoke about transition to work services. Regina said that transition to employment is usually provided from high school by the Oklahoma Department of Education (OSDE) and the Department of Rehabilitative (DRS) services. When they are not able to provide the employment services, DDS will step in and play a role. If there is an IEP in place for the student and employment training is part the IEP then DDS will not be needed because the responsibility lies with OSDE and DRS. When those options are exhausted or when the person needing employment services is out of school, DDS has a program to support individuals with developmental disabilities to become employed. She explained that the DHS/DDS Employment Services for those ON the waiting list, are state funded services and CAN be accessed while waiting for waiver services. If a person is interested in employment they do NOT have to wait for their name to come to the top of the list. There are two types of employment services the person can receive, Community Integrated Employment (CIE) and Sheltered Workshops. Community Integrated Employment – Job placement, training and support by a certified job coach in community settings such as local business (individual and group)Once a person has been approved for DDS Employment Services you will need to choose a provider depending on the service that was approved, Community Integrated Employment or Shelter workshops. List of Shelter Workshop Providers List of Community Integrated Employment Providers
  • For more information contact Regina Chace, Programs Supervisor, Employment/Adult Day Servicesregina.chase@okdhs.org or (405) 521-4973.
  • Sheltered Workshop – is a segregated employment setting and is paid work and training, it includes contract work and volunteer work.
  • In order to apply for DDS Employment Services, you will need to call your area DDS office. Apply by clicking HERE. Please NOTE – you need to tell the “Intake” operator that you want to apply for the DDS Employment Service AND the DDS Waiver, if you are interested. You must know these are two different requests. If you only want to apply for the employment services, make sure to explain that, too.
  • Family Questions & Comments
    • There was much discussion following the talk about DDS Employment services regarding the lack of information to families and about what employment looks for in students with disabilities. Regina said that her staff has made a concerted effort to educate local teachers about the state employment program in hopes of adding to those who use this program. It was also suggested that they follow up with those areas to see if that kind of awareness improves the number of students accessing that program. It was also discussed that it should be expanded across the state to assure that all students and teachers understand the availability of this program.
    • It was also discussed that this kind of information needs to be provided to parents way before it’s time to graduate. Families don’t know or understand how a person with developmental disabilities will be able to be employed and be able to work. This information and supports need to be explained in elementary and middle school to assure that families have a vision for their child’s future.
    • One parent also discussed her challenges with accessing respite while her child is receiving Family Support Subsidy. She was able to make a connection with a few other families and professionals who plan to help her navigate the situation. She also mentioned that when she tried to apply for State Funded Personal Care she was told that because she’s “abled body” her daughter would not qualify. She was also connected with a parent who is going to help her navigate that process because that is not how that service is determined. The service is determined by the needs of the person with disabilities, not the parent. Also, please note, this is a single mom attempting to receive some assistance while her daughter waits.


  • Next MeetingSequoyah Building, Capitol Complex Room C-47
  • Thursday, September 11, 2014 @ 1:30PM




DHS / DDS Waiting List Meeting

Oklahoma State Capitol Complex

Sequoyah Memorial Office Building C-47

Thursday – March 13, 2014

1:30 PM

  1. Welcome
  2. Introductions  
  3. The is a time to go around the room and give your name, where you’re from and your interest in the waiting list or DDS services, i.e. family member, waiting for services, receiving services, agency representing.
  4. DHS Update – Ed Lake, DHS Director
  5. Waiting List Update – JoAnne Goin, DDS Director Waiting List Breakdown
  6. State Personal Care – Kelli Davidson, DHS Medicaid – Aging
  7. Family Questions & Comments
  8. Developmental Disability Awareness Day – State Capitol South StepsThursday, April 17, 2014Visit your legislators before or after (call and make an appointment)

T-shirt order http://villagescreenprint.com/dda_201 (deadline to order April 8th)

Rally – 10:00 AM

“Hear Me Roar”

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