DHS / DDS Waiting List Meeting

Thursday – March 12, 2015

1:30 PM



 Serving Application Date: January 20, 2006

Attendees: 26

Represented in attendance:

17 – Parent or Family Member

4 – Self-Advocate (person with a disability)


2 – OHCA (Health Care Authority)


Representing those on the Waiting List – 14

First Time Attendees – 6

Locations represented – Norman, Kingfisher, Midwest City, Oklahoma City, Moore, Tulsa, Roland, Yukon, Edmond, Mustang, Blanchard

Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, SoonerSUCCESS, Oklahoma Autism Network, Oklahoma Disability Law Center, Oklahoma Developmental Disabilities Council/Partners in Policymaking, Oklahoma Family Network, Oklahoma LEND,

DHS Update – Ed Lake, DHS Director, spoke about the state’s challenging budget, and how anticipated budget will not be what was when they submitted their budget to the state legislature several months ago. He mentioned that there will be no carryover as in years past to cover the increase in administrative needs for Child Welfare or even DDS. In addition to the concerns about the budget and even if they are level funded, but that doesn’t seem to be an expected reality, DHS/DDS is also challenged with the decrease of the federal match for Medicaid services, including the waivers. The change in the federal match will be a loss of about 7 million dollars, which will need to be covered by whatever budget is appropriated. Even with this dismal budget outlook, it’s important to note that DHS has changed the method of requesting annual appropriations to narrow their focus and justification to only a few programs in their agency. First on the list is Child Welfare and the Pinnacle plan, with the DDS Waiting list being second in priorities. Director Lake said they have requested an additional 4.6 million to directly impact the Waiting List.

Waiting List Update – JoAnne Goin, DDS Director, reiterated what Director Lake mentioned about the challenges DDS will be facing with the reduction from the federal match for Medicaid services. I asked if she feels this will impacted the provider rates and she said that is a valid concern.

She said there are only eight individuals still living at SORC (Southern Oklahoma Resource Center) and anticipates the full closer of the institution this year. She reported that NORCE was closed on November 17th of last year.

She said as of October 2014, they have utilized all the funds appropriated from last year’s legislative session. In FY 2014 DDS worked 547 applications from the waiting list. They have added 194 to HCBS Waivers and then from July to Oct, 2014 they worked an additional 152 application with adding 58 people to the HCBS waivers. They have 6-8 pending, which means they are still working through approval for waivers. When asked how many of the 547 “worked” for FY 2014 did not receive services due to not qualify for DDS Waivers due to lack of qualifying IQ score. It is reported that only 12 did not meet the Medicaid criteria which is about 2%.  It was also reported that of the 547, 85 applicants declined and of those who declined 46 were due wanting to continue receiving the FSPS ($250 monthly payment).

JoAnne also wanted people to know that you can apply on-line for the DDS waivers. Here is the link: http://www.okdhs.org/programsandservices/dd/docs/areacontactinfo.htm Also, families are encouraged to update their contact information and add a second contact to their information.  You can update at this link: https://surveys.okdhs.org/TakeSurvey.aspx?SurveyID=mlL2l58


Waiting List Breakdown_county_Jan 2015

Update on Governor’s Blue Ribbon Panel – I have an update on the Blue Ribbon Panel. The Panel plans to have their complete recommendations at the last meeting on March 27th.  Some things that were discovered during the process of looking at non-waiver available services to people on the waiting list it was discovered the incontinence supports (diapers) can be available to children when medically necessary.  The Governor’s office is working the OHCA to make this happen. The anticipated date of availability is July 2015.  It was also discussed that there were other services that seemed to have a barrier to access, and the Governor’s office is working to streamline access, such as personal care for children which is based out of Aging Services.

Family Questions & Comments:

A father from rural Oklahoma asked why Oklahoma has not considered the Community First Option as our state Medicaid plan.  There was a lot of conversation about this topic from this dad. He feels this will end the waiting list. I have looked into this a while back, and it does appear to be an expansion of the current Medicaid state plan but does allow for a 6% added enhanced rate for any newly added service to the state plan. He reports that there are other states looking at or moving to this Medicaid program. I think there is more need for discussion around this topic.

There was no other comments from any other family.

Next Meeting – Oklahoma City

 ***Tuesday, June 23, 2015

Sequoyah Building – Capitol Complex

Room C-47 (Basement)

1:30 pm




DHS / DDS Waiting List Meeting

Tulsa, Oklahoma

Thursday – December 11, 2014

1:30 PM

Serving Application Date: January 20, 2006

Attendees: 20

Represented in attendance:

8 – Parent or Family Member

1 – Self-Advocate (person with a disability)


1 – OHCA (Health Care Authority) via telephone

1 – Oklahoma House of Representatives

7 – Agency supporting those with developmental disabilities in Oklahoma


Representing those on the Waiting List – 6

First Time Attendees – 13

Locations represented – Tulsa, Jenks, Broken Arrow, Oklahoma City, Norman, and Haskell

Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, SoonerSUCCESS, ResCare, CAP Tulsa, Jenks Public Schools

Mark Jones, Director of Community Living and Support Services, talked about the budget request submitted to the Oklahoma Legislature. He said that DHS has reduced the number of priorities to seven. Where, in the past they could have over 20 priorities. He said the first priority on DHS list is to be able to fulfil the Pinnacle plan addressing the Foster Care system in Oklahoma. The DDS Waiting List is included in their top priorities. Mark continued to explain that DHS has request more than $4,000,000 to make a significant impact to the waiting list. He estimates that this funding could serve more than 400 people, with removal of more from the list.

JoAnne Goin, DDS Director, reported DDS is working application date January 20, 2006. The current number on the list is 7,012. Since 2012, they have worked 1,166 application from the waiting list, meaning they have removed 1,116 from the waiting list. She also reported that as of three weeks ago the Northern Oklahoma Resource Center in Enid is now closed. All residents have been transitioned to a community supported living situation. She added the at this time there were still 13 residents living at the Southern Oklahoma Resource Center in Pauls Valley.

JoAnne reported the appropriations for the Waiting list from the 2014 legislative session has been used as of October 2014. She explained that due to the amount of time on the waiting list, locating those who have waited the longest seems to be the greatest challenge. With that DDS has contracted with a “locator” service to help assist finding applicants when the typical means of using state service directors is not working.

She also reported that DDS has made a few changes to the “In-take” process when a person requests the waiver application. In-Take is not increasing referrals to community supports and services. JoAnne also mentioned the federal planning grant that was been awarded to Oklahoma called the “No Wrong Door”. This grant is an opportunity for developmental disability services and the aging supports division to create and plan to streamline the in-take process for each program. She is very excited about the potential of this planning grant. She also said that ADRC website/portal should be up and running in March or April 2015

JoAnne, also said that as of October 2014, DHS had hired a new Adult Protection Services director, Gail Welstein. She also discussed that this year the focus will be on improve and increase the use of the state funded employment services and DRS’ change in transition efforts for students with the employment first focus.

Waiting List Breakdown_Oct 6 2014

Waiting List 100614 by County

Lisa DeBolt, Parent & Tulsa County Coordinator, SoonerSUCCESS brought up a situation that seems to be happening more and more in the Tulsa area. Lisa brought another parent who she’s been supporting through SoonerSUCCESS. This mom’s son has graduated from high school and is in need of a day program so mom can continue working. All the programs this mom looked into, had no openings for DD waivers. After looking deeper into the situation in the Tulsa area this mom learned that many of the day programs for adults was designed for the aging adult. She only found four adult day programs who would accept an adult with developmental disabilities and who’s support level was not too high. She also learned the payment or reimbursement structure actually supported more aging adults than adults with developmental disabilities. It was explained to her that for a person with DD the day rate is $45 a day, and the rate for an aging adult is $60 a day. This explains the limited number of “slots” available for individuals with DD. This mom wanted to request equal funding no matter which program they are accesses the service through.

Family Questions & Comments: Another parent brought up a similar situation but in regards to after school programs for students with DD. She said in her area she is not able to find any program and this is challenging her family and her job as her son must be cared for in a safe environment. She would like DDS to help build the capacity in the communities to help meet this need of families.

One other mom brought up a challenge for her son who needs incontinent briefs to keep him clean. While her son was in toddler diapers, she was able to receive name brand diapers up to a size 4. While the name brand diapers to go a size 6 because the program that provides them, they are not able to access those sized. They are required to now use the state contract adult briefs which appear to be about three sizes too big. This mom said that when she put the new adult briefs on her son, her covered his abdomen up to his chest.  She would like the SSI-DCP program to consider using toddler diapers up to the limit size they have available. I took a picture of the diapers to compare the difference in sized.





Next Meeting – Oklahoma City

 Thursday, March 12, 2015

Sequoyah Building – Capitol Complex

Room C-47 (Basement)

1:30 pm




DHS / DDS Waiting List Meeting

Thursday – September 11, 2014

1:30 PM

  Working Application January 2006

 Attendees: 30

Represented in attendance:

13 – Parent or Family Member

1 – Self-Advocate (person with a disability)

1 – Governor’s Office

1 – Governor’s Blue Ribbon Panel Chair


1 – OHCA (Health Care Authority)

1 – Department of Rehabilitative Services

4 – Agency supporting those with developmental disabilities in Oklahoma

1 – Gubernatorial Candidate staff

Representing those on the Waiting List – 8

First Time Attendees – 5

Locations represented – Norman, Noble, Oklahoma City, Mustang, Broken Bow, Duncan and Moore

Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, Oklahoma LEND, SoonerSUCCESS, Oklahoma SibShops, Office of Disability Concerns, Putnam City Schools, Oklahoma Disability Law Center, Duncan Group Homes, Oklahoma Family Network, Oklahoma Developmental Disability Council

 Waiting List Update – JoAnne Goin, DDS Director, discussed the number of people served because of the most recent legislative appropriations to address the waiting list.  There were 130 added to waiver services. They are working application date January 2006 and will be working applications at a rate of about 30 a month until they use the full amount appropriated. Ms. Goin also discussed the closing of the two state run institutions, Northern Oklahoma Resource Center, Enid (NORCE) and Southern Oklahoma Resource Center in Pauls Valley, (SORC).  They anticipate to have all of the residents living at NORCE moved by the end of the year and hope to have the last few at SORC moved within a few months. She reported that the transitions to the community have had a few hic-ups but are moving as projected.

Waiting List Breakdown_June 30 2014

Waiting List Breakdown_June 30 2014 with county

Family Questions & Comments

A provider from Duncan brought messages received by her agency over the past week or so:

  1. 55 year old man supported by a 90 year old mother who broke her hip
  2. 30 year old man who is supported by his mom who has stage 4 cancer. Hospice has been recommended by the mom’s doctor
  3. Mother who has a 17 year old son in an out of school residential school. The son will be turning 18 and graduating in December and she needs a residential placement when he comes home.
  4. An adult sibling called about her elderly mom and sister who has Down Syndrome currently lives in Missouri but will be moving back to Oklahoma so she can assist with care of the mom and sister. She needs information and her sister is not on the Waiting List.

A parent spoke about his 24 year old son who uses a wheelchair for mobility. He spoke about three issues affecting his son: 1) bath chair broke and SoonerCare has denied request to purchase a replacement. 2) His son needs new AFO (splints for ankles) and SoonerCare has denied coverage for these orthotics. 3) Dental coverage just to repair cavities

A mom from Canadian County spoke of her 25 year old daughter who requires constant care talked about being a single mom and trying to take care of her daughter and work to support them both. Her daughter is on adult SoonerCare and receives SSI.  She had a difficult time talking about their issues and challenges due to periotic stops for crying. She did tell us about the high stress, challenges and cost to pay for her daughter’s prescription medication with the 6 prescription limitation SoonerCare has for adults. There was no offer of support or assistance given to this mom when she finished speaking.

Another parent from Broken Bow has a daughter who is seven years old daughter who has severe developmental and medical disabilities and challenges. This is a single living in a small house. They are a nurse and the daughter is on SoonerCare through the TEFRA qualification process. They are in extreme need for architectural modification so that she can request and use a Hoyer lift. The bathroom is too small for the lift to fit and so is the daughter’s bedroom.

One more issue brought up was the cost of the psychological examination that is cover by DDS for those applying for DDS, but for those applying for TEFRA this exam must be at the cost of the family. JoAnne Goin said that DDS pays their contracted psychologist $350 per exam. It was suggested that OHCA contract with psychologist for the same purpose regardless of who pays for the service.

All the issues mentioned by families, except one, were addressed by JoAnne Goin, DDS, and Lori Kann, OHCA.  I would like to thank both of you for offering to help these families and following up with them after the meeting.


Next Meeting – Tulsa!

Thursday, December 11, 2014 @ 1:30PM

Skyline East Building – 3rd Floor Conference Room

6128 E. 38th Street

Tulsa, Oklahoma





DHS / DDS Waiting List Meeting

June 12, 2014

1:30 PM

Working Application Date: Oct. 2005

Attendees: 29

Represented in attendance:

8 – Parent or Family Member

6 – Self-Advocate (person with a disability)


2 – OHCA (Health Care Authority)

4 – Agency supporting those with developmental disabilities in Oklahoma

2 – Oklahoma House of Representatives

Representing those on the Waiting List – 9

First Time Attendees – 9

Locations represented – Mustang, Anadarko, Oklahoma City, Del City, Norman, Midwest City, Moore, Sand Springs


Community agencies, programs or organizations represented: Center for Learning and Leadership/OK UCEDD, Oklahoma LEND, SoonerSUCCESS, Phoenix Residential Services, Apex Provider Agency, and Dynasty Care Services

  • DHS Update – Ed Lake, DHS Director – It was a tough year for the Oklahoma Legislature because of the expected budget shortfall, but Oklahoma DHS fared well. Director Lake said DHS had no reductions and was in fact increased to help meet the Pinnacle Plan. The governor and the Oklahoma legislature approved an additional $1 million to work the waiting list. Director Lake reports it was a good year for the DHS budget all together.
    • A parent asked Director Lake if the full amount needed to dissolve the waiting list was requested from the legislature this year. Director Lake reported that they did not request the full amount needed understanding the current climate of Oklahoma’s budget, but they do request a certain amount which has for the past three session been reduced to the $1million they have actually received.
  • Waiting List Update – Marie Moore, DDS Deputy Director & Debbie Pumphrey, DDS Deputy Director – It was reported that they are working application date Oct. 2005. They have moved 268 people to waivers over the past two years. They currently have 111 cases pending. Until the past two months, when the budget was undecided, they were pulling 50 cases a month from the waiting list, to “work”. When the budget discussion started and they were not sure if they would actually receive the million dollars they reduced the number to 30 a month. With this new appropriation, they will go back to pulling 50-60 cases a month to be ‘worked’. Of the cases removed from the waiting list, 60-75% have been closed due to inability to locate or they have moved out of state, 12% have declined for different reasons, i.e. continuing with the Family Support Subsidy, no longer wanted service, or unknown. It was reported that less than 4% of those removed from the waiting list did not qualify due to not meeting DDS or Medicaid eligibility. They also reported that there were about 120 individuals placed on waivers in the past year due to emergency situations. Most of those emergencies were identified due to the state taking custody of the person. When asked the number of those coming off the waiting list who were children versus adult, it was reported that about 1/3 were children and the rest adults. When asked how many qualify for Community Waiver instead of the In-Home Supports waiver, it was reported that 15% will receive the Community supports waiver.

Waiting List Breakdown_March 31 2014

Waiting List Breakdown by county March 2014

  • State Funded Employment Services – Regina Chase, DDS spoke about transition to work services. Regina said that transition to employment is usually provided from high school by the Oklahoma Department of Education (OSDE) and the Department of Rehabilitative (DRS) services. When they are not able to provide the employment services, DDS will step in and play a role. If there is an IEP in place for the student and employment training is part the IEP then DDS will not be needed because the responsibility lies with OSDE and DRS. When those options are exhausted or when the person needing employment services is out of school, DDS has a program to support individuals with developmental disabilities to become employed. She explained that the DHS/DDS Employment Services for those ON the waiting list, are state funded services and CAN be accessed while waiting for waiver services. If a person is interested in employment they do NOT have to wait for their name to come to the top of the list. There are two types of employment services the person can receive, Community Integrated Employment (CIE) and Sheltered Workshops. Community Integrated Employment – Job placement, training and support by a certified job coach in community settings such as local business (individual and group)Once a person has been approved for DDS Employment Services you will need to choose a provider depending on the service that was approved, Community Integrated Employment or Shelter workshops. List of Shelter Workshop Providers List of Community Integrated Employment Providers
  • For more information contact Regina Chace, Programs Supervisor, Employment/Adult Day Servicesregina.chase@okdhs.org or (405) 521-4973.
  • Sheltered Workshop – is a segregated employment setting and is paid work and training, it includes contract work and volunteer work.
  • In order to apply for DDS Employment Services, you will need to call your area DDS office. Apply by clicking HERE. Please NOTE – you need to tell the “Intake” operator that you want to apply for the DDS Employment Service AND the DDS Waiver, if you are interested. You must know these are two different requests. If you only want to apply for the employment services, make sure to explain that, too.
  • Family Questions & Comments
    • There was much discussion following the talk about DDS Employment services regarding the lack of information to families and about what employment looks for in students with disabilities. Regina said that her staff has made a concerted effort to educate local teachers about the state employment program in hopes of adding to those who use this program. It was also suggested that they follow up with those areas to see if that kind of awareness improves the number of students accessing that program. It was also discussed that it should be expanded across the state to assure that all students and teachers understand the availability of this program.
    • It was also discussed that this kind of information needs to be provided to parents way before it’s time to graduate. Families don’t know or understand how a person with developmental disabilities will be able to be employed and be able to work. This information and supports need to be explained in elementary and middle school to assure that families have a vision for their child’s future.
    • One parent also discussed her challenges with accessing respite while her child is receiving Family Support Subsidy. She was able to make a connection with a few other families and professionals who plan to help her navigate the situation. She also mentioned that when she tried to apply for State Funded Personal Care she was told that because she’s “abled body” her daughter would not qualify. She was also connected with a parent who is going to help her navigate that process because that is not how that service is determined. The service is determined by the needs of the person with disabilities, not the parent. Also, please note, this is a single mom attempting to receive some assistance while her daughter waits.


  • Next MeetingSequoyah Building, Capitol Complex Room C-47
  • Thursday, September 11, 2014 @ 1:30PM




DHS / DDS Waiting List Meeting

Oklahoma State Capitol Complex

Sequoyah Memorial Office Building C-47

Thursday – March 13, 2014

1:30 PM

  1. Welcome
  2. Introductions  
  3. The is a time to go around the room and give your name, where you’re from and your interest in the waiting list or DDS services, i.e. family member, waiting for services, receiving services, agency representing.
  4. DHS Update – Ed Lake, DHS Director
  5. Waiting List Update – JoAnne Goin, DDS Director Waiting List Breakdown
  6. State Personal Care – Kelli Davidson, DHS Medicaid – Aging
  7. Family Questions & Comments
  8. Developmental Disability Awareness Day – State Capitol South StepsThursday, April 17, 2014Visit your legislators before or after (call and make an appointment)

T-shirt order http://villagescreenprint.com/dda_201 (deadline to order April 8th)

Rally – 10:00 AM

“Hear Me Roar”

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